The following tools and resources are contained in the above sections of the toolkit. Links are up to date as of July 31sT. Note that these resources are provided for informative purposes only and should not be construed as legal advice nor as the opinion of CSTE.

HIPAA and public health 

• HHS Special Topics in Health Information Privacy, Public Health. 
• Privacy Rule and Public Health, Guidance from CDC and HHS.  
• Minimum Necessary Rule. 
• Public health disclosure checklist.

Indian Health Care Improvement Act Amendments of 2010

• 25 USC 1621m: Designation of Tribal Epidemiology Centers as Public Health Authorities for the purposes of HIPAA 
• TECs are Public Health Authorities. 
• Hodge, Kaufman, and Jaques, 2011. “Legal Issues Concerning Identifiable Health Data Sharing Between State & Local Health Authorities and TECs in Select Jurisdictions.” Report to CSTE. 

• The Tribal Epidemiology Centers 
• Best Practices for AI/AN Data Collection – Urban Indian Health Institute 
• NativeDATA Sharing Resource for Native Peoples and Organizations – Northwest Portland Area Indian Health Board
• Indigenous Data Sovereignty Resolution – National Congress of American Indians  
• Engaging Tribal Leaders Toolkit – National Indian Health Board 
• Working with Tribes Training – National Indian Health Board 
• Exchanging Public Health Data with Tribal Jurisdictions – American Indian Health Commission for Washington State 
• Model Tribal Data Sharing Agreement – American Indian Health Commission for Washington State 
• O’Connell & Abourezk, (2023). Facilitating the urgent public health need to improve data sharing with Tribal Epidemiology Centers. Public Health Reports; 138(2). 

• Enhancing Data Access to Improve American Indian and Alaska Native Health: A Framework for State and Local Public Health Officials – CSTE Policy Brief  
• Tribal Public Health and the Law – CDC 
• History of AI/AN Health Care – Kaiser Family Foundation 
• Disaggregation of Public Health Data by Race & Ethnicity: A Legal Handbook – Network for Public Health Law 
• U.S. Department of Health and Human Services Tribal Consultation Policy – US DHHS
• Cultural Humility: Basics for working with California Native Americans – California Office of the Tribal Advisor